Genetics: screening, choice and rights

Genetic screening and testing is becoming an increasingly important issue for anyone concerned with learning disability issues.

This report was commissioned to review research that has already been conducted on:

  • the information available to pregnant women (and their partners)
  • contemplating screening and the availability of screening itself
  • the ethical assumptions and arguments which underpin much of the basis for
  • offering and accepting (or indeed declining) screening
  • whether screening is presented and/or taken up as a genuine 'free choice'¬†
  • the implications for people with learning disabilities themselves who are contemplating screening or testing¬†